Lobbying Records (Page 1 of 196)
SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG
2025-12-30
Intent: Swift implementation of SMA and SCID in NBS bloodspot screening programme
Details: Rare diseases and newborn screening of babies
Officials: Michael Healy-Rae, Naoise O'Cearúil, Cian O'Callaghan, Thomas Gould, Shónagh Ní Raghallaigh, Roderic O'Gorman, Duncan Smith, Marie Sherlock, ...
Methods: To raise specific parliamentary questions on the subject of newborn screening - Email
Age Action
Current/Former DPOWhat is lobbying? (FAQ)2025-10-28
Intent: That HIQA be brought before the Health Committee
Details: Failures in care of older people in long term residential care
Officials: Pádraig Rice, Michael Cahill, Martin Daly, Pádraig O'Sullivan, Colm Burke, Peter Roche, Marie Sherlock, Sorca Clarke, ...
Methods: To request the Health Committee to invite HIQA to discuss the issues arising from the RTE Investigates programme on failures in care of older people in long term residential care - Email
Vulcan Consulting Limited
2025-09-21
Intent: To raise the profile of rare disease policy amongst Irish political stakeholders & seek updates on a range of rare disease policy matters.
Details: Rare Disease Policy in Ireland
Officials: Pádraig O'Sullivan, Jennifer Carroll MacNeill, Pádraig Rice, Colm Burke, David Cullinane, Michael Cahill, Sorca Clarke, Martin Daly, ...
Methods: Email, Phone call, Submission
Vulcan Consulting Limited
2025-09-21
Intent: Highlighting MSD's footprint in Ireland and raising awareness of key health policy priorities
Details: Strategic Operations in Ireland & Healthcare Priorities
Officials: Louise O'Reilly, Robert O'Donoghue, Grace Boland, Darragh O'Brien, Duncan Smith, Ann Graves, Regina Doherty, Lynn Boylan, ...
Methods: Email, Phone call
Vulcan Consulting Limited
2025-09-21
Intent: To raise awareness of the challenges associated with diagnosing and treating Pulmonary Arterial Hypertension in Ireland
Details: Pulmonary Arterial Hypertension Awareness
Officials: John Lahart, Paula Butterly, Jennifer Murnane O'Connor, Manus Boyle, Peter Roche, Pádraig O'Sullivan, Maria Byrne, Colm Burke, ...
Methods: Phone call, Informal communication, Event / Reception
Irish Medical Organisation
2025-09-21
Intent: That only professions who have statutory regulation should be designated as Mental Health Professions.The provisions under Part 3 Chapter 3 - Consent to Treatment (Involuntary Admissions) of the Bill, should be deleted. The criteria for involuntary admission and treatment should be the same and thus the admission order should become an admission and treatment order. That Risk criteria in Section 12 (1) (a) should be removed. ::the requirement for a psychosocial assessment should be removed from Section 22 and Sections 37. Sections 179 & 181 regarding regulations of care plans should be removed from the legislation. The Mental Health Commission instead should be tasked with developing clinical guidelines based on international best evidence. the act should establish a 24 hour Administration office under the HSE that is responsible for adminstrative functions.::When inspecting Mental Health Services, the Mental Health Commission should assess the budget allocation received by that ser
Details: Mental Health Bill
Officials: Pádraig Rice, Colm Burke, Martin Daly, Michael Cahill, Sorca Clarke, David Cullinane, Pádraig O'Sullivan, Marie Sherlock, ...
Methods: Meeting with TD Martin Daly and Meeting with Joint Oireachtas Committee on Health - Meeting, Submission to the Joint Oireachtas Committee on Health - Submission
Rare Diseases Ireland
2025-09-20
Intent: Inclusion of rare disease topics on schedule for Health Committee meetings.
Details: Request to prioritise rare diseases for discussion at Health Committee meetings
Officials: Nicole Ryan, Teresa Costello, Tom Clonan, Maria Byrne, Manus Boyle, Marie Sherlock, Peter Roche, Pádraig O'Sullivan, ...
Methods: Email to members of Health Committee asking them to ensure that rare diseases are included in meeting schedules for the Committee. - Email
Lir Communications Ltd
Current/Former DPOWhat is lobbying? (FAQ)2025-09-20
Intent: Raise awareness about Explorium's successful visitor numbers in one year since reopening, new programmes and initiatives planned in the coming months, and to highlight Explorium's potential as a national resource.
Details: Letter requesting a meeting to highlight Explorium’s positive role in science education for children and young people and its potential as a national resource.
Officials: John Brady, Paul McAuliffe, Catherine Ardagh, Cathy Bennett, Grace Boland, Joanna Byrne, Catherine Connolly, Albert Dolan, ...
Methods: Email, Meeting, Informal communication, ...
Rare Diseases Ireland
2025-09-20
Intent: Inclusion of rare diseases as a priority for Ireland to showcase during Ireland's EU Presidency in 2026.
Details: Seeking to highlight rare diseases during Ireland's EU Presidency in 2026 with an official event during the presidency
Officials: Jennifer Carroll MacNeill, Stephen Foley, Muiris O’Connor, Simon Harris, Thomas Byrne, James Lawless, Peter Burke, Catherine Ardagh, ...
Methods: Invitation to selected TDs & Senators to join a meeting discussing plans to request official rare disease event during EU Presidency. - Email, 1 hour meeting of Oireachtas All Party Group on Rare Diseases meeting to discuss importance and reasoning for highlighting rare diseases during EU Presidency - Meeting, Letter sent to Ministers for Health requesting official event highlighting rare diseases during EU Presidency - copied to Tánaiste, Minister for Foreign Affairs and Trade, Minister of State at the Department of the Taoiseach, Minister for Further and Higher Education, Research, Innovation and Science, Minister for Enterprise, Tourism and Employment - Letter
The Irish Farmers' Association - IFA
2025-09-19
Intent: That the Government and MEPs must honour their commitments to stand up for farmers and defend their interests by opposing the current Mercosur trade deal.::To discuss farmers' concerns with the Minister for Foreign Affairs::To reiterate strong opposition to the Mercosur agreement in its current form. The beef industry in Ireland supports 90,000 farmers and around 25,000 jobs and is critical to the rural economy. There are very strong concerns about the impact the EU-Mercosur trade agreement would have on the viability of some 90,000 families.::That, while it is often argued that an additional 99,000t of beef from the Mercosur block countries would represent only 1-2% of the EU beef market, this statistic is in fact very misleading. The high value EU steak market (fillet, striploin, and cube) will be targeted by Mercosur beef exporters and will impact EU producers' ability to achieve a positive return on the carcass. 30% of the value of the carcass is contained within the yield of high
Details: Mercosur Trade Deal
Officials: Aindrias Moynihan, Alan Dillon, Billy Kelleher, Brendan Smith, Brian Brennan, Cathal Byrne, Cathy Bennett, Charlie McConalogue, ...
Methods: Meeting, Informal communication, Email, ...