Lobbying Records (Page 1 of 187)
Diabetes Ireland
2025-09-05
Intent: To work with relevant stakeholders to developa work stream to include the development of astrategic framework to improve quality of lifefor people with diabetes and reduce long termcosts to the health service of diabetescomplications.
Details: To seek sustained investment in supporting people living with diabetes and promote a more strategic approach to addressing long term improvements making huge government cost savings, increase Oireachtas members awareness about the scale and severity of diabetes and its impact on society and to work , ...
Officials: Pádraig Rice, Cormac Devlin, Marie Sherlock, Jennifer Carroll MacNeill, Jennifer Carroll MacNeill, James Browne, Jerry Buttimer, Padráig Mac Lochlainn, ...
Methods: Diabetes Ireland delegation met with the Minister for Health during a visit to Letterkenny University Hospital seeking funding for an increase in diabetes staff resources in the hospital. - Meeting, Diabetes Ireland delegation contacted the office of the Minister for Health regarding a reply to their request for funding to increase diabetes staff resources in the Letterkenny University hospital. - Email, Letter sent to Minister for Health seeking publication of her Department's 'Diabetes Policy & Services Review' Report and requesting a meeting with Diabetes Ireland representatives - Letter, ...
BioMarin International Limited
2025-09-03
Intent: Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients
Details: Rare disease policy in Ireland and the EU
Officials: James O'Connor, John Lahart, Erin McGreehan, Cynthia Ní Mhurchú, Barry Cowen, Mary Rose Desmond, Micheál Martin, Pádraig O'Sullivan, ...
Methods: Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients - Email, Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients - Meeting, Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients - Phone call, ...
SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG
2025-08-29
Intent: Individuals with SMA who were <18yo when the medicine was approved continue to receive treatment into adulthood. However, their peers who were over 18 are excluded from treatment. This injustice continues, With a small number of adults excluded from treatment. We are campaigning to see that these adults are not discriminated from treatment simply according to age.
Details: SMA and adult access to treatment
Officials: Colm Burke, Pádraig O'Sullivan, Hildegarde Naughton, Barry Ward, Paul Murphy
GME Media
2025-08-29
Intent: To asertain if consideration would be given by the Department of Health for the inclusion of 'Big Puff' vape devices in the Public Health (Tobacco Products and Nicotine Inhaling Products) Act 2023
Details: To ascertain government policy in the vape sector
Officials: Colm Burke
Methods: Email, Phone call
Construction Industry Federation (CIF)
2025-08-29
Intent: To encourage the construction of critical public infrastructure
Details: Meeting to discuss housing supply, NDP, Projects & Infrastructure for Cork.
Officials: Simon Harris, Colm Burke, Jerry Buttimer, Jack O'Donnell
Methods: Meeting held on Friday, 27th June - Meeting
Health Research Charities Ireland
2025-08-27
Intent: A meeting to discuss support in furthering the three asks contained in the HRCI Position Paper 2025 -resourcing the HSE Action Plan for Health Research, 2019 – 2029, enacting legislation on research ethics committees and biobanking and over the lifetime of this Government, increasing research and development investment, year-on-year, to the EU average of 0.71% of GDP, with a particular focus on health and social care research.
Details: Support for the asks contained in the HRCI Position Paper 2025
Officials: Peter Roche, Sorca Clarke, David Cullinane, Marie Sherlock, Pádraig O'Sullivan, Martin Daly, Michael Cahill, Colm Burke, ...
Methods: Email invitations and follow up emails sent to members of the Health Oireachtas Committee to invite them to meet and discuss the HRCI Position Paper asks. - Email
Polio Survivors Ireland
2025-08-22
Intent: Emailed 9 TDs requesting that they submit parliamentary questions on our behalf to the Minister for Health.
Details: Parliamentary Questions
Officials: David Cullinane, Pádraig Rice, Marie Sherlock, Colm Burke, Robert O'Donoghue, Holly Cairns, Ruairí Ó Murchú, Tom Brabazon, ...
Methods: Email
Polio Survivors Ireland
2025-08-22
Intent: To ask the Committee if improved access to therapies and services at local and community-based level will be considered in the workplan.
Details: Wrote to the Joint Committee on Health
Officials: Pádraig Rice, Colm Burke, Michael Cahill, Sorca Clarke, David Cullinane, Martin Daly, Pádraig O'Sullivan, Peter Roche, ...
Methods: The health committee met to consider correspondence and said they have noted and acknowledged correspondence. - Email
MSD
2025-08-19
Intent: to highlight the need for additional funding and extra resources for the pulmonary arterial hypertension unit in the Mater Hospital to allow it to safely and effectively provide care to patients as newer therapies have become available.
Details: pulmonary arterial hypertension
Officials: Colm Burke
Methods: Email
Irish Society for Colitis and Crohn's Disease
2025-07-02
Intent: To call for a review of the LTI Scheme
Details: Review of Long Term Illness Scheme; Provided information about Crohn's and Colitis and the ongoing challenges being experienced by patients in Ireland at present.
Officials: Colm Burke
Methods: Meeting with Deputy Colm Burke in Leinster House - Meeting