Lobbying Records (Page 1 of 90)
Polio Survivors Ireland
2025-12-19
Intent: Request that the Committee considers and discusses the concerns and takes corrective action urgently
Details: Wrote to the Joint Committee on Justice, Home Affairs and Migration to express urgent concern regarding the challenges faced by persons with disabilities living within the Direct Provision system.
Officials: Matt Carthy, Paula Butterly, Tom Brabazon, Michael Cahill, Catherine Callaghan, Alan Kelly, Pádraig O'Sullivan, Mark Ward, ...
Methods: Collaborative letter co-signed by a collective of advocates, organisations and academics - Letter
Irish Platform for Patients' Organisations, Science and Industry
2025-12-19
Intent: Recommend the establishment of a multi-stakeholder advisory group in January 2026 to advance this and deliver on commitment laid out in Programme for Government
Details: Medicines Assessment and Reimbursement Process in Ireland
Officials: Pádraig O'Sullivan, Erin McGreehan, Teresa Costello, Michael Cahill
Methods: Representatives from Rare Diseases Ireland and IPPOSI met with Paidraig O’Sullivan TD, Erin McGreehan TD, Senator Teresa Costello, and Michael Cahill TD to share statistics around access to new medicines in Ireland and the impact this will not only have on patients but also wider innovation landscape based on learnings from Europe. - Meeting
Age Action
Current/Former DPOWhat is lobbying? (FAQ)2025-10-28
Intent: That HIQA be brought before the Health Committee
Details: Failures in care of older people in long term residential care
Officials: Pádraig Rice, Michael Cahill, Martin Daly, Pádraig O'Sullivan, Colm Burke, Peter Roche, Marie Sherlock, Sorca Clarke, ...
Methods: To request the Health Committee to invite HIQA to discuss the issues arising from the RTE Investigates programme on failures in care of older people in long term residential care - Email
Childhood Cancer Foundation
2025-10-01
Intent: To find out when paediatric bone marrow transplant services will return in CHI at Crumlin.
Details: To ask TDs to submit a parliamentary question on the lack of paediatric bone marrow transplant currently available in Ireland
Officials: Réada Cronin, Sorca Clarke, Marie Sherlock, David Cullinane, Pádraig O'Sullivan
Methods: To ask TDs to submit a parliamentary question on when paediatric bone marrow transplant (allogeinic) transplant will return in CHI at Crumlin. - Email
MSD
2025-09-25
Intent: Discussion health policy that relates to combination therapies, rare diseases including orphan medicines and early access in the Irish healthcare systems
Details: Rare disease strategy
Officials: Pádraig O'Sullivan
Methods: Email, Meeting
Epilepsy Ireland
2025-09-22
Intent: For the Deputies to support our ongoing campaign to add epilepsy to the CDMP and promote increased epilepsy management at community level.
Details: Met local TDs at an Epilepsy Ireland event highlighting why epilepsy should be added to the HSE's Chronic Disease Mangement Programme (CDMP)
Officials: Donnchadh Ó Laoghaire, Pádraig O'Sullivan, Pádraig Rice, Eoghan Kenny
Methods: Event / Reception
TG4
2025-09-21
Intent: Tacaíocht bhreise do TG4
Details: Ag lorg tacaíocht bhreise do TG4
Officials: Aoife MacEvilly, Sinéad Gibney, Cynthia Ní Mhurchú, Conor D McGuinness, Joanna Byrne, Aengus Ó Snodaigh, Dara Calleary, Naoise O'Cearúil, ...
Methods: Aoife McEvilly Coimisiún na Meán cuairt ar TG4 ar 30/5/2025, plé ar mhaoiniú ilbhliaintiúil do TG4 agus ceist Moladh 7.1 do cheannas eagarthóireacht neamhspleách ar Nuacht TG4. Chruinniú le Deirdre Ní Choistín Ard Stiúrthóir. - Meeting, Rphoist ar 1/7/2025 agus ar 14/7/25 ó Trevor Ó Clochartaigh chuig Aengus Ó Snodaigh ag iarraidh cruinniú réamhbhuiséad a shocrú ag lorg tacaíocht breise do TG4. - Email, Rphoist ar 1/7/2025 ó Trevor Ó Clochartaigh chuig Sinéad Gibney ag iarraidh cruinniú réamhbhuiséad a shocrú ag lorg tacaíocht breise do TG4. - Email, ...
Vulcan Consulting Limited
2025-09-21
Intent: To raise the profile of rare disease policy amongst Irish political stakeholders & seek updates on a range of rare disease policy matters.
Details: Rare Disease Policy in Ireland
Officials: Pádraig O'Sullivan, Jennifer Carroll MacNeill, Pádraig Rice, Colm Burke, David Cullinane, Michael Cahill, Sorca Clarke, Martin Daly, ...
Methods: Email, Phone call, Submission
Vulcan Consulting Limited
2025-09-21
Intent: To raise awareness of the challenges associated with diagnosing and treating Pulmonary Arterial Hypertension in Ireland
Details: Pulmonary Arterial Hypertension Awareness
Officials: John Lahart, Paula Butterly, Jennifer Murnane O'Connor, Manus Boyle, Peter Roche, Pádraig O'Sullivan, Maria Byrne, Colm Burke, ...
Methods: Phone call, Informal communication, Event / Reception
Vulcan Consulting Limited
2025-09-21
Intent: Awareness raising and improving access to treatments for people with rare diseases.
Details: Rare Disease Policy
Officials: Pádraig O'Sullivan
Methods: Informal communication