Intent: A meeting with CEO to ensure:A clear transparent timeline and pathway for the allocation of the €700,000 funding for EB. Every family who have a care package has access to a care coordinator. A unified and flexible funding model that removes barriers between disability and nursing budgets and enables rapid response to changing care needs with flexible multiagency service delivery. Investment in training and workforce and enhanced rates for complex care. PHN Involvement in community care
Details: Concern re implementation of care packages for people living with EB and the status of the allocation of €700,000 funding that a previous Minister for Health committed to in 2024
Intent: we are seeking that the provisions of the Red Weather Warning Policy, as previously agreed between unions and the Health Service Executive, will be applied in full to workers impacted by current protests. This must include the immediate implementation of the relevant clauses relating to emergency leave and stay-on arrangements and remuneration in relation to same.
20/03/26: NFVSP Representatives attended a meeting with Anne Marie Hoey (HSE Chief People Officer). This meeting was held to discuss and progress issues of shared importance between HSE and Disability Service Providers. - Virtual Meeting23/03/26: Letter was sent by Alison Harnett (NFVSP CEO) and Michael Hennessy (NFVSP Chairperson) to Anne O'Connor (HSE CEO) congratulating her on her new role and inviting her to an introductory meeting and general discussion on key strategic priorities facing the disability sector. Meeting was scheduled for 1 May 2026 - Letter
Intent: Meeting to discuss Traveller and Roma health inequalities and the role of the HSE in addressing barriers to healthcare access and health outcomes for the two groups
Discussion about ABI Ireland assisted living home in Dublin 9 with Senator Mary Fitzpatrick - Virtual MeetingDiscussion on specialist case management with Deputy Barry Ward during his visit to an ABI Ireland assisted living home in Dun Laoghaire. - MeetingInform specific members of the Oireachtas about paediatric community neurorehabilitation services. - Email