Rare Diseases Ireland
Intent: Reimbursement of Friedriech's ataxia drug Skyclarys
Details: Letter to HSE leadership re reimbursement of Skyclarys for people living with Freidriech's ataxia
No current committee memberships matched for this official.
Intent: Reimbursement of Friedriech's ataxia drug Skyclarys
Details: Letter to HSE leadership re reimbursement of Skyclarys for people living with Freidriech's ataxia
Intent: System shaping for advanced therapies like radioligand therapy and accelerating the time to access for patients in Ireland. ::Policy actions to reduce delays in patient access to innovative medicines
Details: Valuing Innovation & Advanced Cancer Therapy - policy and access
Intent: Ensure national health system integration of EU regulations such as the EU Medical Device Regulation, Digital Omnibus, and European Health Data Space.
Details: EU regulatory framework for digital health
Intent: Invitaion to present to the IMO AGM 2026 on HSE plans for the digitalisation of the health services
Details: Invitaion to present to the IMO AGM 2026 on HSE plans for the digitalisation of the health services
Intent: To discuss health and homelessness, funding for section 39 positions.
Details: Simon Communities across Ireland meeting with HSE
Intent: Raise awareness of how Apple can support national health objectives
Details: Meeting with Health Service Executive to discuss the benefits of Apple's iOS platform and third party apps in healthcare delivery
Intent: Establishment of a comprehensive adult vaccination programme
Details: Immunisation policy
Intent: Invite stakeholders to the MFI breakfast briefing event, 'Digital Solutions for a greener industry', and seek to highlight the urgent need for transition to digital-first communication with healthcare professionals to reduce inefficiencies, environmental impact and rising costs.
Details: Correspondence to relevant stakeholders regarding MFI event 'Digital Solutions for a Greener Industry'.
Intent: Raise concerns regarding the use of the myGovID online identity platform for the HSE Health App initiative.
Details: HSE Health App
Intent: Raise awareness of the perspectives shared by the 24 members of the public participating in the IPPOSI Citizens' Jury from Sept-Dec 2024.
Details: The Use of Artificial Intelligence (AI) in Healthcare in Ireland