Lobbying Records (Page 1 of 1)
National Federation of Voluntary Service Providers Supporting People with Intellectual Disability
2025-09-22
Intent: Immediate action to tackle the untenable financial risks faced by Section 38 and Section 39 disability service providers that deliver essential services to people with intellectual disabilities and autism
Details: Calling for immediate action to tackle the untenable financial risks faced by Section 38 and Section 39 disability service providers that deliver essential services to people with intellectual disabilities and autism
Officials: Bernard Gloster, Hildegarde Naughton, Norma Foley, Ciarán Devane, Kevin McCarthy, Colm Ó Conaill, Michael Brennan, Stephen Mulvany, ...
Methods: 16th May 2025: Alison Harnett shared a letter signed by the Chairperson's of 28 NFVSP member organisations with Bernard Gloster, HSE CEO outlining untenable risks to their organisations' financial stability and impact these issues are having on people with intellectual disabilities and autism. The letter requested a meeting to identify immediate actions to address these risks. Follow up emails were exchanged with Bernard Gloster's office regarding the meeting request contained in the letter. - Email, 16th May 2025: Alison Harnett shared a letter signed by the Chairperson's of 28 NFVSP member organisations with Minister Naughton outlining untenable risks to their organisations' financial stability and the impact these issues are having on people with intellectual disabilities and autism. The letter requested a meeting to identify immediate actions to address these risks. Follow up emails were exchanged with Minister Naughton's office regarding the meeting request contained in the letter. - Email, 16th May 2025: Alison Harnett (NFVSP CEO) shared a letter signed by Chairperson's of 28 NFVSP member organisations with Colm O'Connail & Kevin McCarthy outlining risks to their organisations' financial stability and the impact these issues have on people with disabilities. The letter requested a meeting to identify immediate actions. Emails with Colm O'Conaill and Kevin McCarthy's office responding to the letter and following up with the meeting request contained in the Chairperson's letter. - Email, ...
Janssen Sciences Ireland UC
2025-09-20
Intent: To improve patient access to innovative medicinal products in Ireland::To encourage the commencement of discussions between the innovative pharmaceutical industry and the State on a new framework agreement on patient access and medicines reimbursement
Details: Engagement with HSE on IPHA Agreement and patient access to new medicines
Officials: Stephen Mulvany
Methods: Informal conversation at event in Dublin - Informal communication
National Federation of Voluntary Service Providers Supporting People with Intellectual Disability
2025-05-21
Intent: Engaging with key stakeholders to progress priorities for Disability Service Providers and People who are supported by disability services
Details: Communicating priorities for people with disabilities and service providers to key stakeholders
Officials: Colm Ó Conaill, Norma Foley, Hildegarde Naughton, Paul Melia, Elizabeth Canavan, Stephen Mulvany
Methods: 21/01/25: Alison Harnett (NFVSP CEO) and Helena Connors (NFVSP Policy and Research Officer) attended a meeting arranged by the Department discussing findings from the Growing Up in Ireland Survey, during which they shared priorities experienced by people with intellectual disabilities and autism - Meeting, 30/01/25: Alison Harnett (NFVSP CEO) attended a meeting with Colm O'Conaill (Assistant Secretary General of DCEDIY), Minister Foley and Minister Naughton regarding the sustainability issues facing our sector, the unmet need presenting, and the sectors commitment to working in partnership with the Ministers to address and respond to these issues. - Meeting, 31/01/25: Emails sent to Minister Foley and Minister Naughton inviting them to attend an upcoming NFVSP General Assembly. - Email, ...