Politician(s) lobbied: Martin Daly (TD), Dáil Éireann, the Oireachtas; Tom Clonan (Senator), Seanad; Colm Burke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Marie Sherlock (TD), Dáil Éireann, the Oireachtas
Intent: To support policy makers to develop a National Cardiovascular Strategy in the context of the European Commission's Safe Hearts Plan and call to action for all member states.
Methods: MeetingEmail
Details by Method
Method not specified
Roundtable policy meeting to discuss EU and Irish Cardiovascular Strategy
Politician(s) lobbied: Aingeal O'Donoghue (Permanent Representative of Ireland to the European Union), Department of Foreign Affairs
Intent: Plans for Ireland's EU Presidency and importance of pro-innovation theme
Methods: Meeting
Details by Method
Method not specified
Policy Agenda for the EU Presidency
Politician(s) lobbied: Teresa Costello (Senator), Seanad; Colm Burke (TD), Dáil Éireann, the Oireachtas
Intent: Express the importance of timely access to advanced cancer therapies requires alignment between policy ambition and implementation
Methods: Meeting
Details by Method
Method not specified
Attended an event for World Cancer Day
Politician(s) lobbied: John Shaw (Assistant Secretary), Department of the Taoiseach
Intent: Contribute to flagship AI government event for EU Presidency
Methods: Meeting
Details by Method
Method not specified
European Presidency plans for Ireland
Politician(s) lobbied: Colm Burke (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Frank Feighan (Minister of State), Department of Public Expenditure, National Development Plan Delivery and Reform; Marie Sherlock (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Erin McGreehan (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Jennifer Carroll MacNeill (Minister), Department of Health; Jennifer Murnane O'Connor (Minister of State), Department of Health; Pádraig Rice (TD), Dáil Éireann, the Oireachtas; Michael Cahill (TD), Dáil Éireann, the Oireachtas; Colm Henry (Chief Clinical Officer), Health Service Executive; Robert Watt (Secretary General), Department of Health; Peter Roche (TD), Dáil Éireann, the Oireachtas; Manus Boyle (Senator), Seanad; Maria Byrne (Senator), Seanad; Tom Clonan (Senator), Seanad; Teresa Costello (Senator), Seanad; Nicole Ryan (Senator), Seanad; Johnny Guirke (TD), Dáil Éireann, the Oireachtas; Catherine Ardagh (TD), Dáil Éireann, the Oireachtas; Conor Sheehan (TD), Dáil Éireann, the Oireachtas; Barry Heneghan (TD), Dáil Éireann, the Oireachtas; Michael Fitzmaurice (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas
Intent: Government adopt key policy recommendations to enable health system readiness for advanced cancer therapies eg Car T and radio ligand therapy (RLT) in Ireland
Methods: Event / ReceptionMeetingEmailInformal communication
Details by Method
Method not specified
Supporting a Health Policy Partnership Initiative for them to run a roundtable and draft a white paper with policy stakeholders.
Politician(s) lobbied: Professor Mary Horgan (Chief Medical Officer), Department of Health
Intent: Plans for development of a National Cardiovascular Strategy and Health System Shaping for Advanced Therapies like Car-T and RLT
Methods: Event / Reception
Details by Method
Method not specified
IIEA event on EU Presidency and Public Health
Politician(s) lobbied: Muiris O’Connor (Assistant Secretary), Department of Health; Gary Tobin (Assistant Secretary), Department of Enterprise, Trade and Employment
Intent: Inclusion of pro-innovation policy in the Life Sciences Strategy to enable health system readiness for advanced cancer therapies eg Car-T and radio ligand therapy (RLT) and fast and fair access to innovative treatments.
Methods: Meeting
Details by Method
Method not specified
National Life Sciences Strategy
Politician(s) lobbied: Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Erin McGreehan (Senator), Seanad; Albert Dolan (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Barry Ward (TD), Dáil Éireann, the Oireachtas; Pádraig Rice (TD), Dáil Éireann, the Oireachtas; Ged Nash (TD), Dáil Éireann, the Oireachtas; Marie Sherlock (TD), Dáil Éireann, the Oireachtas; Mairéad Farrell (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas
Intent: Implementation of the decision to include SMA in newborn screening
Methods: Email
Details by Method
Method not specified
Implementation of the decision to include SMA in newborn screening
Politician(s) lobbied: Albert Dolan (TD), Dáil Éireann, the Oireachtas; Martin Fraser (Ambassador), Department of Foreign Affairs; Muiris O’Connor (Assistant Secretary), Department of Health; Albert Dolan (TD), Dáil Éireann, the Oireachtas; Jennifer Carroll MacNeill (Minister), Department of Health; Simon Harris (Tánaiste and Minister), Department of Foreign Affairs; Jack Chambers (Minister), Department of Finance
Intent: A National Life Science Strategy encompassing fast and fair access to innovative treatments::Improves wait time for access to innovative treatments for patients in Ireland
Methods: Event / ReceptionInformal communicationMeeting
Details by Method
Method not specified
Advocate for Life Science Strategy
Politician(s) lobbied: Colm Burke (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Shane Moynihan (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas
Intent: Implementation of Life Sciences commitments in programme for government for Rare Diseases::Fast and Fair Access to Innovation and Genetic Screening
Methods: Informal communicationEvent / Reception
Details by Method
Method not specified
Invited to the Joint Oireachtas All Party Committee on Orphan Drugs (3/12/25)