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Lobbying Records (Page 1 of 4)
2025-05-15
Politician(s) lobbied: Jennifer Carroll MacNeill (Minister), Department of Health
Intent: Timely inclusion of SMA in heal prick test
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Timely inclusion of SMA in heal prick test |
2025-05-15
Politician(s) lobbied: Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas; Bernard Gloster (Chief Executive Officer), Health Service Executive; Jennifer Carroll MacNeill (Minister), Department of Health; Colm Henry (Chief Clinical Officer), Health Service Executive
Intent: Policy support and the support of the HSE in ensuring to Pluvicto® becomes available for eligible patients in Ireland so that patients in Ireland have timely access to cutting edge therapies, similar to their European counterparts.
Methods: Letter
Details & Methods:
| Method | Description |
|---|---|
| — | Reimbursement decision for the treatment of metastatic castration-resistant prostate cancer (mCRPC) |
2025-05-15
Politician(s) lobbied: Joe Hackett (Assistant Secretary), Department of Foreign Affairs
Intent: Ireland seen as pro-innovation with regard to their position on EU health policies
Methods: Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Competitivness |
| — | government needs to be perceived as pro-innovation |
Politician(s) lobbied: John Lahart (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Dara Calleary (Minister of State), Department of Enterprise, Trade and Employment; Peter Burke (Minister), Department of Enterprise, Trade and Employment; Peter Burke (Minister), Department of Enterprise, Trade and Employment; Colm Burke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Mairéad Farrell (TD), Dáil Éireann, the Oireachtas; Louise O'Reilly (TD), Dáil Éireann, the Oireachtas
Intent: Advocating for the need to develop a Life Science Strategy for Ireland
Methods: Meeting, Email
Details & Methods:
| Method | Description |
|---|---|
| — | Life Sciences strategy for Ireland |
2024-12-17
Politician(s) lobbied: Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Colm Burke (Minister of State), Department of Health; Neale Richmond (Minister of State), Department of Finance; Stephen Donnelly (Minister), Department of Health; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Robbie Gallagher (Senator), Seanad
Intent: Timely implementation of SMA testing into the heel prick test for newborns
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Implementation of SMA testing into the heel prick test for newborns |
2024-09-20
Politician(s) lobbied: David Cullinane (TD), Dáil Éireann, the Oireachtas
Intent: establishment of Office of Life Sciences or Life Science Strategy
Methods: Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | To fund an Office of Life Sciences or Life Science Strategy |
2024-09-18
Politician(s) lobbied: John Lahart (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Pauline Tully (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Stephen Donnelly (Minister), Department of Health; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Holly Cairns (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Ged Nash (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; John Brady (TD), Dáil Éireann, the Oireachtas; Neale Richmond (Minister of State), Department of Finance; Neale Richmond (Minister of State), Department of Finance; Robbie Gallagher (Senator), Seanad; Roderic O'Gorman (Minister), Department of Children, Equality, Disability, Integration and Youth; Josepha Madigan (Minister of State), Department of Education; Micheál Carrigy (Senator), Seanad; Michael Healy-Rae (TD), Dáil Éireann, the Oireachtas; Anne Rabbitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Richard Boyd Barrett (TD), Dáil Éireann, the Oireachtas; Michael Creed (TD), Dáil Éireann, the Oireachtas; Michael Collins (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; Seán Sherlock (TD), Dáil Éireann, the Oireachtas
Intent: Newborn screening for spinal muscular atrophy is implemented for babies in Ireland
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Newborn screening for spinal muscular atrophy (SMA) is implemented for babies in Ireland |
2024-09-18
Politician(s) lobbied: Darragh O'Brien (Minister), Department of Housing, Local Government and Heritage; David Healy (Special Adviser), Department of the Taoiseach
Intent: Ensure equitable responsibility amongst all sectors (rather than just two ie pharma & cosmetics). Delay current legislative text so a fairer legislative text can be ,created.
Methods: Letter, Email, Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Urban waste water directive |
2024-09-18
Politician(s) lobbied: Duncan Smith (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas
Intent: Heart Failure (HF) patients can be prescribed an ARNI (Entresto) based on ESC guidelines, in line with HF patients in other EU countries. The healthcare system needs to get ready for new medicine platforms like radioligand therapies. Importance of Ireland being competitive with regard to attractive clinical trials to Ireland.
Methods: Email, Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Access in Heart Failure (HF) & healthcare system readiness for new medicine platforms like radioligand therapies. Clinical trial attractiveness |
2024-04-27
Politician(s) lobbied: Colm Burke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas
Intent: Ensure that the healthcare system is ready for new novel treatments ie radioligand therapies which are used to treat cancer. Also employing guideline-directed therapy ie 'rapid up-titration' for heart failure patients which would reduce the need for so many outpatient appointments to increase their dose.
Methods: Email, Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Ensure that the healthcare system is ready for new novel treatments like radioligand therapies. Also employing guideline-directed therapy for heart failure patients. |