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Lobbying Records (Page 1 of 2)
2025-07-09
Politician(s) lobbied: Clodagh Ni Mhuiri (Commissioner), Dublin City Council
Intent: Discussion on public toilet review across the country for people living with IBD, as urgent access is required often
Methods: Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Discussion on public toilet review across the country for people living with IBD |
2025-07-09
Politician(s) lobbied: Maria Byrne (Senator), Seanad
Intent: To call for a review of the LTI Scheme; Review of the Hidden Costs with Living with IBD in Ireland report conducted by CCI and J&J
Methods: Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Review of Long Term Illness Scheme; Provided information about Crohn's and Colitis and the ongoing challenges being experienced by patients in Ireland at present. |
2025-07-02
Politician(s) lobbied: Erin McGreehan (TD), Dáil Éireann, the Oireachtas
Intent: To call for a review of the LTI Scheme; Assistance with No Wait Card being used within the Louth constitiuency
Methods: Virtual Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Review of Long Term Illness Scheme; Provided information about Crohn's and Colitis and the ongoing challenges being experienced by patients in Ireland at present. |
2025-07-02
Politician(s) lobbied: Colm Burke (TD), Dáil Éireann, the Oireachtas
Intent: To call for a review of the LTI Scheme
Methods: Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Review of Long Term Illness Scheme; Provided information about Crohn's and Colitis and the ongoing challenges being experienced by patients in Ireland at present. |
2025-06-23
Politician(s) lobbied: Eileen Lynch (Senator), Seanad
Intent: To call for a review of the LTS
Methods: Virtual Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Review of long term illness scheme |
| — | provided information about crohns and colitis and what is like for patients in ireland currently. |
2025-05-09
Politician(s) lobbied: Seán Canney (Minister of State), Department of Transport; Seán Canney (TD), Dáil Éireann, the Oireachtas; Albert Dolan (TD), Dáil Éireann, the Oireachtas; Hildegarde Naughton (TD), Dáil Éireann, the Oireachtas; Mairéad Farrell (TD), Dáil Éireann, the Oireachtas; Louis O'Hara (TD), Dáil Éireann, the Oireachtas
Intent: Inform the deputy on the matters affecting those diagnosed with IBD in Ireland
Methods: Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Key topics included the long-term illness scheme |
| — | access to early diagnosis |
| — | the availability of a full multidisciplinary team comprising dietitians |
| — | IBD nurses |
| — | and psychologists |
| — | as well as public awareness and support for the vital work of CCI. |
2025-01-16
Politician(s) lobbied: Duncan Smith (TD), Dáil Éireann, the Oireachtas
Intent: to inform the deputy of IBD and the realities of living with IBD in Ireland. Informing him of the issues patients face.
Methods: Virtual Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Key topics included the long-term illness scheme |
| — | access to early diagnosis |
| — | the availability of a full multidisciplinary team comprising dietitians |
| — | IBD nurses |
| — | and psychologists |
| — | as well as public awareness and support for the vital work of CCI. |
2024-09-02
Politician(s) lobbied: Neasa Hourigan (TD), Dáil Éireann, the Oireachtas
Intent: Review of Long term illness scheme::further information on recruitment of approved ANPS
Methods: Virtual Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Review of long term illnness |
| — | provided information about crohns and colitis and what is like for patients in ireland currently. Highlighted the recruitment freeze affecting approved ANP roles in IBD |
2024-05-14
Politician(s) lobbied: Anne Rabbitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth
Intent: To secure an SLA for Crohn's and Colitis Ireland::Lift the recruitment freeze on IBD nurses which have been approved::Review of the long term illness scheme
Methods: Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Key topics included the long-term illness scheme |
| — | access to early diagnosis |
| — | the availability of a full multidisciplinary team comprising dietitians |
| — | IBD nurses |
| — | and psychologists |
| — | as well as public awareness and support for the vital work of CCI. |
2023-09-12
Politician(s) lobbied: Ged Nash (TD), Dáil Éireann, the Oireachtas; Annie Hoey (Senator), Seanad
Intent: To highlight the problems that people with IBD in Ireland face.Route to diagnosis and A&E admissionAccess to diagnosis testing and new treatmentsLong-term Illness Scheme - recognize IBD as a life long illnessFinancial burden on IBD patientsChildhood, adolescent, and transitional to adulthood careRecruitment of further support including psychologists and Dietitians
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Thursday 25th May CCI presented to TD's and Senators in Leinster House in Dublin on what its like to live with IBD. We had the support of Senator Annie Hoey and TD Ged Nash. |