Irish Platform for Patients' Organisations, Science and Industry

Politician(s) lobbied: Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Erin McGreehan (TD), Dáil Éireann, the Oireachtas; Teresa Costello (Senator), Seanad; Michael Cahill (TD), Dáil Éireann, the Oireachtas

Intent: Recommend the establishment of a multi-stakeholder advisory group in January 2026 to advance this and deliver on commitment laid out in Programme for Government

Methods: Meeting

Politician(s) lobbied: Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Pádraig Rice (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Michael Cahill (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Martin Daly (TD), Dáil Éireann, the Oireachtas; Peter Roche (TD), Dáil Éireann, the Oireachtas; Marie Sherlock (TD), Dáil Éireann, the Oireachtas; Manus Boyle (Senator), Seanad; Maria Byrne (Senator), Seanad; Tom Clonan (Senator), Seanad; Teresa Costello (Senator), Seanad; Nicole Ryan (Senator), Seanad

Intent: Rare disease plan implementation included on the schedule of work for the Health Committee

Methods: Email

Politician(s) lobbied: Derek Tierney (Assistant Secretary), Department of Health; Muiris O’Connor (Assistant Secretary), Department of Health

Intent: Keep up to date with developments in relation to digital health, AI, and health information management policy

Methods: Virtual Meeting

Politician(s) lobbied: Jennifer Carroll MacNeill (Minister), Department of Health; Peter Burke (Minister), Department of Enterprise, Trade and Employment; Niamh Smyth (TD), Dáil Éireann, the Oireachtas; Derek Tierney (Assistant Secretary), Department of Health; Muiris O’Connor (Assistant Secretary), Department of Health; Damien Mccallion (Chief Technology and Transformation Officer), Health Service Executive

Intent: Raise awareness of the perspectives shared by the 24 members of the public participating in the IPPOSI Citizens' Jury from Sept-Dec 2024.

Methods: Email

Politician(s) lobbied: Unknown

Intent: Unknown

Methods: Unknown

Politician(s) lobbied: Anne Rabbitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Stephen Donnelly (Minister), Department of Health; Paschal Donohoe (Minister), Department of Public Expenditure, NDP Delivery and Reform; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Frances Black (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Martin Conway (Senator), Seanad; Annie Hoey (Senator), Seanad; Seán Kyne (Senator), Seanad; Robert Watt (Secretary General), Department of Health; David Moloney (Secretary General), Department of Public Expenditure, NDP Delivery and Reform; Derek Tierney (Assistant Secretary), Department of Health; Jack Chambers (Minister), Department of Finance; Ossian Smyth (Minister of State), Department of Public Expenditure and Reform; Colm Brophy (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Muiris O’Connor (Assistant Secretary), Department of Health; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Paul McAuliffe (TD), Dáil Éireann, the Oireachtas

Intent: Secure more public funds for issues of priority for our patient members, including digital health, public and patient partnership, rare diseases, national health policy, and new medicines/innovations

Methods: Email

Politician(s) lobbied: Unknown

Intent: Unknown

Methods: Unknown

Politician(s) lobbied: Unknown

Intent: Unknown

Methods: Unknown

Politician(s) lobbied: Anne Rabbitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Stephen Donnelly (Minister), Department of Health; Paschal Donohoe (Minister), Department of Public Expenditure, NDP Delivery and Reform; Michael McGrath (Minister), Department of Finance; Ossian Smyth (Minister of State), Department of Public Expenditure, NDP Delivery and Reform; Colm Burke (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Frances Black (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Martin Conway (Senator), Seanad; Annie Hoey (Senator), Seanad; Seán Kyne (Senator), Seanad; Alan Kelly (TD), Dáil Éireann, the Oireachtas; Robert Watt (Secretary General), Department of Health; David Moloney (Secretary General), Department of Public Expenditure, NDP Delivery and Reform; Derek Tierney (Assistant Secretary), Department of Health

Intent: Secure more public funds for issues of priority for our patient members, including digital health, public and patient partnership, and new medicines/innovations

Methods: Email

Politician(s) lobbied: Derek Tierney (Assistant Secretary), Department of Health; Muiris O’Connor (Assistant Secretary), Department of Health; Barry Lowry (Chief Information Officer), Department of Public Expenditure, NDP Delivery and Reform

Intent: Highlight patient perspectives in relation to the transformation of health care and research enabled by digital solutions, especially in the context of the proposed legislation around the management of health information. Also sought public funding to part-support IPPOSI conference, primarily to cover costs associated with patient members' attendance.

Methods: Email