Politician(s) lobbied: Unknown
Intent: Unknown
Methods: Unknown
Details by Method
Method not specified
Unknown
Politician(s) lobbied: Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Erin McGreehan (TD), Dáil Éireann, the Oireachtas; Teresa Costello (Senator), Seanad; Michael Cahill (TD), Dáil Éireann, the Oireachtas
Intent: Recommend the establishment of a multi-stakeholder advisory group in January 2026 to advance this and deliver on commitment laid out in Programme for Government
Methods: Meeting
Details by Method
Meeting
Representatives from Rare Diseases Ireland and IPPOSI met with Paidraig O’Sullivan TD, Erin McGreehan TD, Senator Teresa Costello, and Michael Cahill TD to share statistics around access to new medicines in Ireland and the impact this will not only have on patients but also wider innovation landscape based on learnings from Europe.
Politician(s) lobbied: Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Pádraig Rice (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Michael Cahill (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Martin Daly (TD), Dáil Éireann, the Oireachtas; Peter Roche (TD), Dáil Éireann, the Oireachtas; Marie Sherlock (TD), Dáil Éireann, the Oireachtas; Manus Boyle (Senator), Seanad; Maria Byrne (Senator), Seanad; Tom Clonan (Senator), Seanad; Teresa Costello (Senator), Seanad; Nicole Ryan (Senator), Seanad
Intent: Rare disease plan implementation included on the schedule of work for the Health Committee
Methods: Email
Politician(s) lobbied: Derek Tierney (Assistant Secretary), Department of Health; Muiris O’Connor (Assistant Secretary), Department of Health
Intent: Keep up to date with developments in relation to digital health, AI, and health information management policy
Methods: Virtual Meeting
Details by Method
Virtual Meeting
Monthly meeting in February (27th) and in March (27th) to learn about updates in relation to digital health, AI, and health information management
Politician(s) lobbied: Jennifer Carroll MacNeill (Minister), Department of Health; Peter Burke (Minister), Department of Enterprise, Trade and Employment; Niamh Smyth (TD), Dáil Éireann, the Oireachtas; Derek Tierney (Assistant Secretary), Department of Health; Muiris O’Connor (Assistant Secretary), Department of Health; Damien Mccallion (Chief Technology and Transformation Officer), Health Service Executive
Intent: Raise awareness of the perspectives shared by the 24 members of the public participating in the IPPOSI Citizens' Jury from Sept-Dec 2024.
Methods: Email
Details by Method
Email
Sharing a copy of the Citizens' Jury report, an open letter from jurors, and an advance copy of the press release announcing the report publication
Politician(s) lobbied: Unknown
Intent: Unknown
Methods: Unknown
Details by Method
Method not specified
Unknown
Politician(s) lobbied: Anne Rabbitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Stephen Donnelly (Minister), Department of Health; Paschal Donohoe (Minister), Department of Public Expenditure, NDP Delivery and Reform; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Róisín Shortall (TD), Dáil Éireann, the Oireachtas; Frances Black (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Martin Conway (Senator), Seanad; Annie Hoey (Senator), Seanad; Seán Kyne (Senator), Seanad; Robert Watt (Secretary General), Department of Health; David Moloney (Secretary General), Department of Public Expenditure, NDP Delivery and Reform; Derek Tierney (Assistant Secretary), Department of Health; Jack Chambers (Minister), Department of Finance; Ossian Smyth (Minister of State), Department of Public Expenditure and Reform; Colm Brophy (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Muiris O’Connor (Assistant Secretary), Department of Health; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Paul McAuliffe (TD), Dáil Éireann, the Oireachtas
Intent: Secure more public funds for issues of priority for our patient members, including digital health, public and patient partnership, rare diseases, national health policy, and new medicines/innovations
Methods: Email
Details by Method
Email
Individual emails sent to key stakeholders sharing a copy of IPPOSI's pre-budget submission 2025
Politician(s) lobbied: Unknown
Intent: Unknown
Methods: Unknown
Details by Method
Method not specified
Unknown
Politician(s) lobbied: Unknown
Intent: Unknown
Methods: Unknown
Details by Method
Method not specified
Unknown
2023-09-05
23 officialsCurrent/Former DPOFAQ Politician(s) lobbied: Anne Rabbitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Stephen Donnelly (Minister), Department of Health; Paschal Donohoe (Minister), Department of Public Expenditure, NDP Delivery and Reform; Michael McGrath (Minister), Department of Finance; Ossian Smyth (Minister of State), Department of Public Expenditure, NDP Delivery and Reform; Colm Burke (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Róisín Shortall (TD), Dáil Éireann, the Oireachtas; Frances Black (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Martin Conway (Senator), Seanad; Annie Hoey (Senator), Seanad; Seán Kyne (Senator), Seanad; Alan Kelly (TD), Dáil Éireann, the Oireachtas; Robert Watt (Secretary General), Department of Health; David Moloney (Secretary General), Department of Public Expenditure, NDP Delivery and Reform; Derek Tierney (Assistant Secretary), Department of Health
Intent: Secure more public funds for issues of priority for our patient members, including digital health, public and patient partnership, and new medicines/innovations
Methods: Email
Details by Method
Email
Individual emails sent to key stakeholders sharing a copy of IPPOSI's pre-budget submission 2024