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Lobbying Records (Page 1 of 5)
2025-06-25
Politician(s) lobbied: Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Pádraig Rice (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Michael Cahill (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Martin Daly (TD), Dáil Éireann, the Oireachtas; Peter Roche (TD), Dáil Éireann, the Oireachtas; Marie Sherlock (TD), Dáil Éireann, the Oireachtas; Manus Boyle (Senator), Seanad; Maria Byrne (Senator), Seanad; Tom Clonan (Senator), Seanad; Teresa Costello (Senator), Seanad; Nicole Ryan (Senator), Seanad
Intent: Rare disease plan implementation included on the schedule of work for the Health Committee
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Implementation of the National Rare Disease Plan |
2025-04-28
Politician(s) lobbied: Derek Tierney (Assistant Secretary), Department of Health; Muiris O’Connor (Assistant Secretary), Department of Health
Intent: Keep up to date with developments in relation to digital health, AI, and health information management policy
Methods: Virtual Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | National developments/updates in relation to digital health |
| — | AI |
| — | health information management |
2025-04-28
Politician(s) lobbied: Jennifer Carroll MacNeill (Minister), Department of Health; Peter Burke (Minister), Department of Enterprise, Trade and Employment; Niamh Smyth (TD), Dáil Éireann, the Oireachtas; Derek Tierney (Assistant Secretary), Department of Health; Muiris O’Connor (Assistant Secretary), Department of Health; Damien Mccallion (Chief Technology and Transformation Officer), Health Service Executive
Intent: Raise awareness of the perspectives shared by the 24 members of the public participating in the IPPOSI Citizens' Jury from Sept-Dec 2024.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | The Use of Artificial Intelligence (AI) in Healthcare in Ireland |
2024-08-30
Politician(s) lobbied: Anne Rabbitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Stephen Donnelly (Minister), Department of Health; Paschal Donohoe (Minister), Department of Public Expenditure, NDP Delivery and Reform; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Frances Black (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Martin Conway (Senator), Seanad; Annie Hoey (Senator), Seanad; Seán Kyne (Senator), Seanad; Robert Watt (Secretary General), Department of Health; David Moloney (Secretary General), Department of Public Expenditure, NDP Delivery and Reform; Derek Tierney (Assistant Secretary), Department of Health; Jack Chambers (Minister), Department of Finance; Ossian Smyth (Minister of State), Department of Public Expenditure and Reform; Colm Brophy (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Muiris O’Connor (Assistant Secretary), Department of Health; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Paul McAuliffe (TD), Dáil Éireann, the Oireachtas
Intent: Secure more public funds for issues of priority for our patient members, including digital health, public and patient partnership, rare diseases, national health policy, and new medicines/innovations
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | IPPOSI pre-budget submission 2025 |
Politician(s) lobbied: Anne Rabbitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Stephen Donnelly (Minister), Department of Health; Paschal Donohoe (Minister), Department of Public Expenditure, NDP Delivery and Reform; Michael McGrath (Minister), Department of Finance; Ossian Smyth (Minister of State), Department of Public Expenditure, NDP Delivery and Reform; Colm Burke (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Frances Black (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Martin Conway (Senator), Seanad; Annie Hoey (Senator), Seanad; Seán Kyne (Senator), Seanad; Alan Kelly (TD), Dáil Éireann, the Oireachtas; Robert Watt (Secretary General), Department of Health; David Moloney (Secretary General), Department of Public Expenditure, NDP Delivery and Reform; Derek Tierney (Assistant Secretary), Department of Health
Intent: Secure more public funds for issues of priority for our patient members, including digital health, public and patient partnership, and new medicines/innovations
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | IPPOSI pre-budget submission 2024 |
2023-09-05
Politician(s) lobbied: Derek Tierney (Assistant Secretary), Department of Health; Muiris O’Connor (Assistant Secretary), Department of Health; Barry Lowry (Chief Information Officer), Department of Public Expenditure, NDP Delivery and Reform
Intent: Highlight patient perspectives in relation to the transformation of health care and research enabled by digital solutions, especially in the context of the proposed legislation around the management of health information. Also sought public funding to part-support IPPOSI conference, primarily to cover costs associated with patient members' attendance.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | IPPOSI Conference 2023 |
2023-05-18
Politician(s) lobbied: Barry Lowry (Chief Information Officer), Department of Public Expenditure and Reform; Muiris O’Connor (Assistant Secretary), Department of Health
Intent: Hear updates from Government officials on plans to build a data sharing health sector in Ireland. ::Share our members' perspectives and preferences for data collection, access, sharing and use. Advocate for a rights-based approach to data sharing, in particular, sharing health information with patients, their families and carers, and ideally allowing them to manage their own health data sharing in the future.
Methods: Email, Virtual Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Discuss plan to build a data sharing health sector in Ireland |
2022-12-15
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health; Robert Watt (Secretary General), Department of Health; Anne Rabbitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Muiris O’Connor (Assistant Secretary), Department of Health; Derek Tierney (Assistant Secretary), Department of Health; Breda Smyth (Interim Chief Medical Officer), Department of Health; David Cullinane (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Frances Black (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Martin Conway (Senator), Seanad; Annie Hoey (Senator), Seanad; Seán Kyne (Senator), Seanad
Intent: Minister, political representatives and civil servants are aware of the perspectives and preferences of members of the public around issues relating to genomics in advance of the publication of a national strategy on genetics and genomics
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Shared report of the verdict of the citizens' jury on the future use of genomics in health care and research in Ireland |
| — | published 11 Oct 2022 |
2022-12-15
Politician(s) lobbied: Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas
Intent: To provide our members with an update on the progress of the private members bill around orphan medicines, and to hear political representative perspectives on the progress of the national rare diseases plan
Methods: Email, Virtual Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Invited Deputy Padraig O'Sullivan to speak at the (online) Third Rare Disease Forum |
| — | 28 November 2022 |
2022-09-08
Politician(s) lobbied: Paul McAuliffe (TD), Dáil Éireann, the Oireachtas
Intent: Share our position on health information, receive an update on legislative timeframe
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Email about health information legislation |
| — | genomics policy |
| — | patient involvement |
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