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Lobbying Records (Page 1 of 2)
2023-09-13
Politician(s) lobbied: Damian Boylan (Councillor), Cork City Council
Intent: To invite Ministers and Senators to our Briefing on the 17th May, to secure the support of Ministers and Senators in our call for a National Strategy for Haemochromatosis and a Contact Lead for Haemochromatosis in the HSE & Department of Health
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Briefing Presentation to Ministers & Senators: Call for National Strategy for Haemochromatosis |
2023-05-14
Politician(s) lobbied: Martin Conway (Senator), Seanad
Intent: A National Strategy for Haemochromatosis to be in place and a Briefing to TDs and Senators to take place in Leinster House
Methods: Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Call for a National Strategy for Haemochromatosis to be developed |
2023-01-19
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health
Intent: Main contact person, HH to be considered a chronic illness, waiving of venesection fees for patients without medical cards and without private insurance
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Request for Haemochromatosis main contact person for the Irish Haemochromatosis Assocation and other outstanding issues for patients to be resolved |
2022-08-31
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health
Intent: To secure main contact point for haemochromatosis within the HSE or the Department of Health
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Email and letter to Minister for Health |
| — | Stephen Donnelly |
| — | asking for reply to our request for a main contact person for haemochromatosis within the HSE or the Department for Health |
2022-05-20
Politician(s) lobbied: Stephen Donnelly (TD), Dáil Éireann, the Oireachtas
Intent: Contact person for haemochromatosis in place
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Follow up email to Stephen Donnelly for HH contact point to be in place within the HSE/Department of Health. |
2022-01-13
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health
Intent: €80 charge for venesections for haemochromatosis patients waived and contact point for haemochromatosis in the Department of Health or the HSE secured for the IHA
Methods: Phone call
Details & Methods:
| Method | Description |
|---|---|
| — | Telephone call to Stephen Donnelly requesting updates and feedback on our request for the €80 charge to be waived for venesections for haemochromatosis patients without private health insurance or medical cards. Request also made for HH contact point to be in place within the HSE/Department of Health. |
2021-09-22
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health
Intent: Response to €80 venesection charge for HH patients and contact point within the HSE/Department of Health secured
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Follow up email to Stephen Donnelly requesting updates and feedback on our request for the €80 charge to be waived for venesections for haemochromatosis patients without private health insurance or medical cards. Request also made for HH contact point to be in place within the HSE/Department of Health. |
2021-05-21
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health
Intent: To discuss issues of concern to Haemochromatosis patients in Ireland
Methods: Virtual Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Meeting with Minister for Health |
| — | Stephen Donnelly |
2021-01-20
Politician(s) lobbied: Colm Burke (TD), Dáil Éireann, the Oireachtas; Thomas Walsh (Councillor), Sligo County Council; Damian Boylan (Councillor), Cork City Council; Susan McCarthy (Councillor), Cork County Council; Madeleine Argue (Councillor), Cavan County Council; Jimmy Kavanagh (Councillor), Donegal County Council; Mark Fitzgerald (Councillor), Tipperary County Council
Intent: To seek the passing of the motion relating to key concerns for haemochromatosis patients in Ireland ie as listed under specific details
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | To raise the followings issues in City and County Councils as a motion and pass the motion - regarding a National Screening Programme for Haemochromatosis; the unjust €80 charged by certain hospital groups for venesection and the listing of haemochromatosis as a life-long or chronic illness |
2021-01-20
Politician(s) lobbied: Colm Burke (TD), Dáil Éireann, the Oireachtas
Intent: To seek responses and engagement from the Department of Health and Minister Stephen Donnelly on the key concerns for haemochromatosis patients in Ireland, ie five main concerns to haemochromatosis patients as listed under specific details
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | To raise the followings issues as Parliamentary Questions: 1. The issue of a National Screening Programme for Haemochromatosis- one in 83 Irish people are predisposed to iron overload . 2 The unjust €80 charged by certain hospital groups for venesection 3 Greater involvement by the HSE in raising awareness of HH and ensuring that no Irish person with Haemochromatosis goes undiagnosed and untreated 4 Venesection by GP's should be mandatory |