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Lobbying Records (Page 1 of 1)
2023-08-30
Politician(s) lobbied: Jennifer Carroll MacNeill (Minister of State), Department of Finance; Deirdre Clune (MEP), European Parliament
Intent: To receive some notification/acknowledgement that are aware of this discrimination against people with life-long medical conditions
Methods: Letter, Email
Details & Methods:
| Method | Description |
|---|---|
| — | To alert representatives to the plight of people with congenital heart disease who are unable to secure life assurance cover and therefore unable to get a mortgage. |
2021-05-13
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health
Intent: Department of Health to ensure this at risk group were prioritised in Cohort 4 of the vaccination programme.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Request to the Minister for Health to prioritise COVID 19 Vaccine for vulnerable at risk people living with complex Congenital Heart Disease. |
2020-08-28
Politician(s) lobbied: Joe McHugh (Minister), Department of Education and Skills
Intent: To ensure our members with Congenital Heart Disease were afforded a safe environment in which to sit their state exams.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Asking the Minister for Education to provide a safe environment for students with Congenital Heart Disease to sit their Leaving certificate and be afforded equal access. |
2020-05-15
Politician(s) lobbied: Joe McHugh (Minister), Department of Education and Skills
Intent: The provision of single rooms for students with Congenital Heart Disease.::To put the issue of students with compromised immune systems on the agenda for the current and future years examinations.
Methods: Phone call
Details & Methods:
| Method | Description |
|---|---|
| — | Asking the Minister for Education to provide a safe environment for students with Congenital Heart Disease to sit their Leaving certificate and be afforded equal access. |
2019-05-20
Politician(s) lobbied: Finian McGrath (TD), Dáil Éireann, the Oireachtas
Intent: Access to relevant personnel to put forward Heart Children Ireland's case for Government funding and to secure such funding.
Methods: Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Heart Children Ireland are seeking Government Funding . Currently |
| — | Heart Children Ireland receives no Government funding. We are seeking to grow our vital services. |
2018-05-16
Politician(s) lobbied: Finian McGrath (Minister of State), Department of Health; Katherine Zappone (Minister), Department of Children and Youth Affairs; Regina Doherty (Minister), Department of Employment Affairs and Social Protection; Simon Harris (Minister), Department of Health
Intent: Medical Cards for children born with Congenital Heart Defects (and those with acquired heart defects)
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Meeting requests to discuss automatic entitlement to Medical Cards for children born with Congenital Heart Defects |
2018-01-15
Politician(s) lobbied: Simon Coveney (Minister), Department of Foreign Affairs
Intent: A meeting with the minister to discuss protocols.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Information requested re repatriation when a child dies abroad. |