All Officials
Select methods...
Lobbying Records (Page 1 of 3)
Politician(s) lobbied: Niamh Smyth (TD), Dáil Éireann, the Oireachtas
Intent: Funding to extend this successful, innovative and patient-led support for those living with sight loss.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Sought funding for Vision Tech project. This initiative has made a significant impact |
| — | helping over 60 individuals with sight loss to access various assistive technologies—from iPhones to Braille Displays—enabling them to pursue education |
| — | employment |
| — | and lead more independent lives. |
2025-01-15
Politician(s) lobbied: Niamh Smyth (TD), Dáil Éireann, the Oireachtas
Intent: Additional funding.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Sought funding for Vision Tech project. This initiative has made a significant impact |
| — | helping over 60 individuals with sight loss to access various assistive technologies—from iPhones to Braille Displays—enabling them to pursue education |
| — | employment |
| — | and lead more independent lives. |
2023-09-07
Politician(s) lobbied: Pa Daly (TD), Dáil Éireann, the Oireachtas; Aodhán Ó Ríordáin (TD), Dáil Éireann, the Oireachtas; Patrick Costello (TD), Dáil Éireann, the Oireachtas; James Browne (Minister of State), Department of Justice
Intent: To ensure that the new Bill does not impact our fundraising through our Private Members' Draw lottery.
Methods: Email, Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Gambling Regulation Bill 2022 |
2023-09-07
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas
Intent: Fighting Blindness hopes to have gene therapy Luxturna made available to those patients with a mutated RPE65 gene that causes sight loss.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | The HSE reimbursement of gene therapy 'Luxturna' |
2023-05-10
Politician(s) lobbied: James Browne (Minister of State), Department of Justice
Intent: To ensure that the new Bill does not impact our fundraising through our Private Members' Draw lottery.
Methods: Email, Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Gambling Regulation Bill 2022 |
2023-05-10
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas
Intent: Fighting Blindness hopes to have gene therapy Luxturna made available to those patients with a mutated RPE65 gene that causes sight loss.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | The HSE reimbursement of gene therapy 'Luxturna' |
2022-05-10
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Alan O'Connor (Councillor), Cork County Council; Peter Burke (TD), Dáil Éireann, the Oireachtas
Intent: Fighting Blindness hopes to have gene therapy Luxturna made available to those patients with a mutated RPE65 gene that causes sight loss.
Methods: Email, Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | The HSE reimbursement of gene therapy 'Luxturna' |
2022-01-07
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health
Intent: Fighting Blindness hopes to have gene therapy Luxturna made available to those patients with a mutated RPE65 gene that causes sight loss.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | The HSE reimbursement of gene therapy 'Luxturna' |
2021-09-01
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health; Micheál Martin (An Taoiseach), Department of the Taoiseach; Frank Feighan (Minister of State), Department of Health; Anne Rabbitte (Minister of State), Department of Health; Norma Foley (Minister), Department of Education; Seán Fleming (Minister of State), Department of Finance; Patrick O'Donovan (Minister of State), Department of Public Expenditure and Reform; Roderic O'Gorman (Minister), Department of Children, Equality, Disability, Integration and Youth; Heather Humphreys (Minister), Department of Social Protection; Paschal Donohoe (Minister), Department of Finance; Tony Holohan (Chief Medical Officer), Department of Health; Kathleen MacLellan (Assistant Secretary), Department of Health
Intent: Fighting Blindness hopes to have gene therapy Luxturna made available to those patients with a mutated RPE65 gene that causes sight loss.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | The HSE reimbursement of gene therapy 'Luxturna' |
2021-05-12
Politician(s) lobbied: Colm Burke (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Micheál Martin (An Taoiseach), Department of the Taoiseach; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas
Intent: Fighting Blindness hopes to have gene therapy Luxturna made available to those patients with a mutated RPE65 gene that causes sight loss.
Methods: Email, Virtual Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | The HSE reimbursement of gene therapy 'Luxturna' |